Hello and welcome to Assert

Welcome to the website for Assert, the Angelman Syndrome Support Education & Research Trust. We are a UK based charity whose primary aims are:


We help support families and carers of people with Angelman Syndrome. We also provide support to professionals who meet AS individuals, even though they may meet very few individuals with Angelman Syndrome in their professional career.


We aim to educate and raise awareness of this rare neurological condition and the issues that surround it. As with many such conditions, Angelman Syndrome is not just about a simple diagnosis, but requires parents and carers to adapt as situations change and the individual grows older.


Historically we have assisted many organisations and individuals in carrying out research into Angelman Syndrome and its many related areas. Much of this research has already provided great benefit to families and carers around the world. Today, we are founder members of the European Angelman Syndrome Alliance – a cross border research initiative that is allowing smaller groups to pool resources for the benefit of all.

Watch our introductory video

Membership – find out more



ASSERT are thrilled to announce that our wonderful Patron, Gareth Edwards, has helped to raise a whopping £25,000 for ASSERT at the Star Wars Celebration Europe on Friday. This was made possible by the amazing generosity of ACME Archives who very kindly co-ordinated this special opportunity for us. 250 limited edition prints were produced for “Rogue One: A Star Wars Story” and these were sold at £100 each. All proceeds have been very kindly donated to ASSERT. Thank you very much ACME Archives and also to Gareth! This is a massive amount of money and we are extremely grateful.


Nuneaton director helps to highlight disorder

Nuneaton’s Gareth Edwards is doing his bit to bring International Angelman Day (IAD) to the attention of residents in the town and further afield.


The event is taking place today and the movie-maker, who had a monster hit with ‘Godzilla’ and is also working on the Star Wars spin-off, ‘Rogue One’ for its release later this year, wants everyone to find out more about Angelman Syndrome (AS) and the charity ASSERT (Angelman Syndrome Support Education and Research Trust).
Gareth is the patron of the good cause and it is very close to his heart as his niece, Ella, was born with AS.
His sister and Ella’s mum, Lisa Court who lives in Nuneaton, is also a trustee of the organisation.
She said: “I became a trustee of ASSERT because I wanted to give something back for all the support we received in the early years, and still receive now.

“ASSERT is a little known charity that relies solely on donations.
“The support it gives to families affected by AS is invaluable.
“Raising the profile of AS will help raise funds which will in turn benefit our families.”
This is the fourth year that IAD has been running.
The month of February was chosen because it is rare disease month, and the 15th was chosen as Angelman Syndrome is caused because of issue with chromosome 15.
IAD is celebrated around the world with a number of countries hosting various events to raise awareness of the syndrome.

In the UK 16 separate meetings have been organised with families invited to go along meet new families, catch up with old friends and join together and celebrate all the positives.
Gareth added: “It’s an honour to be the patron of the national charity for my niece’s syndrome.
“My sister once loaned me money to help fund my student film. Later she joked if I ever became a successful director I can repay her by being the patron of her charity, so I guess this means I’ve made it.
“I really hope that by being associated with Angelman Syndrome and ASSERT I can help raise the profile of the syndrome. It’s such a rare disorder that very few people have heard of it and so I want to do what I can to help raise awareness.

“This is a big year for me with the release of Star Wars, and hopefully an even bigger year for ASSERT as we continue to raise awareness of the condition.
“Unfortunately I cant make IAD due to work commitments, but I know the families will all have a brilliant time in my hometown of Nuneaton.”
AS is a chromosome disorder that affects around one in between 15,000 and 20,000 individuals.
The main characteristics of AS are severe learning difficulties, no or limited speech, mobility issues and epilepsy. Individuals with AS will require 24/7 care for the rest of their life.
ASSERT is run by volunteers who all have a personal connection to AS.
The main aims of the organisation are support, education and research.
It relies solely on donations and all trustees are volunteers doing the role in their spare time.

Nuneaton News 15th January 2016

Zoom in on the image of Dr Harry Angelman to see some familiar faces!

Assert supports the 7 Days of Action Campaign, which aims to raise awareness of and bring about change for the people in Assessment and Treatment Units (ATUs).

ATUs are designed to be short-term secure placements for people with learning disabilities to receive treatment before moving back into the community. However, too often these services failing those who they are supposed to be supporting, with tragic and sometimes fatal consequences.

Across the UK, 3000 people are being held in an ATU, often many miles away from their families, often for many years at a time.

Like everybody else, the people in these units deserve to be living back home with their families or living in their own homes, with the right support. This is why the Assert is supporting this campaign.

News from our Facebook page:

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Jeans for Genes are supporting @Angelman Syndrome Support, Education & Research Trust (ASSERT) with a grant this year towards their family conference which provides a unique opportunity for families to meet with each other and world leading experts in a non-judgemental setting where Angelman Syndrome is completely accepted. Support #jeansforgenes this year and over do it in denim

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Just something small that our patron, Gareth Edwards has put together....... We can't wait. ... See MoreSee Less

Rogue One: A Star Wars Story Full Trailer

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Letters with full conference details have gone out today to all conference attendees, ahead of the family holidays. See you at #coventry2016 ... See MoreSee Less

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© Angelman Syndrome Support Education & Research Trust – ASSERT 2016